The
following group of people have been kind enough to provide their
contact emails. They are willing to share information with individuals
and families dealing with XLP.
David Hartley - Great Britain
Salvador Sandoval
Peter Bay-Smidt - Denmark
Angela O'Hare -
Uk/Ireland
Susan Abramowitz - USA
MĒ Luisa Rodriguez -
Spain
Tabatha Marshall - USA
Theresa LaRue - USA
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