XLP Patient and Family Contact    

The following group of people have been kind enough to provide their contact emails. They are willing to share information with individuals and families dealing with XLP.


David Hartley - Great Britain
Salvador Sandoval
Peter Bay-Smidt - Denmark
Angela O'Hare - Uk/Ireland
Susan Abramowitz - USA
MĒ Luisa Rodriguez - Spain
Tabatha Marshall - USA
Theresa LaRue - USA


 
   
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  This site is dedicated to all those we have loved and lost in their battle with XLP.