XLP Patient and Family Contact    

The following group of people have been kind enough to provide their contact emails. They are willing to share information with individuals and families dealing with XLP.

David Hartley - Great Britain
Salvador Sandoval
Peter Bay-Smidt - Denmark
Angela O'Hare - Uk/Ireland
Susan Abramowitz - USA
MĒ Luisa Rodriguez - Spain
Tabatha Marshall - USA
Theresa LaRue - USA

  Home Page  
What is XLP?  
Keep in Touch
Literature On XLP    
Positive Stories    
    Add your email to our mail list  
  This site is dedicated to all those we have loved and lost in their battle with XLP.